He Has What??

   I'm starting my blog by writing about something I'd never even heard of until Tuesday.

Now it's my new passion. It's called Williams Syndrome and my 6 month old son has it.

It's a condition that explains a lot of the issues we've been having with him. So in a way it's a relief that it has a name. 

  I feel like there's so much you all should know...but don't know where to start.

 So first meet the Joy of our lives...Jacob

Doesn't he just make you smile!!

   What I want you to know is that Jake has heart problems. He has aortic and pulmonary valve stenosis. That means his valves are somewhat closed making his heart work harder.

Until Tuesday we thought it's just one of those things...now we know it's  a result of Williams Syndrome.  His cardiologist expects balloon surgery at some point to open the aortic valve back up. So far ...so good with the pulmonary side of things.

  What else you should know is that people with Williams Syndrome are not like everyone else.

Although they usually do great with reading and music... the majority have some sort of mental retardation. Five percent don't...and we pray that we are part of that five percent.

Here's the link to the Williams Syndrome Association website. (www.williams-syndrome.org)

I am hoping my family and friends will learn about WSA so you can understand our precious baby boy.

   He is our perfect gift from God.

    Don't get me wrong...we would have never have chosen this but we know God chose it for us...so who's to argue with the creator.

Dave and I are doing pretty good. We've had our crying spells and it's all felt like a dream for a day or two.  But we choose joy and we choose God. We are totally committed to Jake and ready to give him the best life possible.  For our family: we can't tell you how much your love and support means to us. Just keep us in your prayers as we begin this journey... we know you will.